Provider Practices in Screening for Mental Health Concerns in Caregivers of Patients with Primary Immunodeficiency

Primary immunodeficiency disorders (PID) are a diverse group of diseases that impact the immune system and require intensive treatment. The psychosocial impact of PID may be particularly pronounced among caregivers of children diagnosed with PID who often experience disruption to work and family responsibilities related to diagnosis and treatment, and face ongoing uncertainty regarding recurrent infections, hospitalizations, and life-threatening treatment. The psychological impact of chronic diseases may influence patient medical and psychosocial outcomes as well.

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