Cancer in children with intellectual disabilities: Questioning and ethical issues

xlomafota13 shared this article with you from Inoreader Cancer in children with intellectual disabilities: Questioning and ethical issues Via Association française pour l'étude du cancer Bull Cancer. 2021 Jul 30:S0007-4551(21)00273-3. doi: 10.1016/j.bulcan.2021.07.001. Online ahead of print. ABSTRACT The Parents and Caregivers group in the face of ethics in pediatrics of the Île-de-France Ethics Area wondered about the association of the words Disability and Cancer by focusing on the study of the course of children with intellectual disability, treated for cancer. These situations are exceptional, the number of cases in France must not be more than fifty per year. We gathered the testimony of five families of children using a semi-directive survey taking up the journey from birth, announcement of the handicap, the diagnosis of cancer and its treatment. The verbatim show that each story is unique and rich in lessons, despite the feeling of "double penalty": "He did not deserve this, a handicap plus cancer is a lot for one person", "the shot moreover." A healthcare team was also interviewed and raised an additional ques tion: "First, the double penalty… then, what's the point?" Through these testimonies, we sought to question the ethical principles of care, which can be shaken up in these extraordinary supported. PMID:34340841 | DOI:10.1016/j.bulcan.2021.07.001 View on the web Inoreader. Take back control of your news feed. Follow us on Twitter and Facebook.